IVF, ICSI, HSG, RE what?!?

Tonight I decided to sit down and look at some information for IVF.  I’m desperately trying to learn all the acronyms and information so that I am not clueless. So far… I am clueless. I do actually know what the four in the subject line mean so I guess that is a start!
I have the mock embryo transfer this coming week. It is simple and easy from what I have heard, but I am still nervous.  Thankfully, Kevin is able to go with me to distract me some.  Soon I will have the HSG (Hysterosalpingogram) test (they will light me up with dye and look for any potential issues).  I am not looking forward to that test!  The good news we have is that they will freeze some of Kevin’s sperm.  This way we will have something to fall back on if something goes wrong in the fall.
I am glad that they are being proactive with everything.  We are getting all of these test out of the way so when we are ready, we are actually ready.  This is a uncanny mix of emotions.  I think we have figured out a roughly estimated time frame for when we want to do the transfer (not sharing the date so we can have some sort of surprise down the road).  It is exciting to think that this time next year we may be in a completely different situation.  It is also scary because nothing is ever guaranteed. We are just going to keep trucking through this and maybe make myself an infertility dictionary in the meantime!  I just hope we can get a picture of when they do the ICSI so we can put it in our children’s baby books.  How amazing would that be to have the very picture of when you started?  Just a clump of cells that look like nothing to the eye.  Maybe that is weird… At least if my kids hate it, I can use it as blackmail in the future?

As scared as I am about this process, I am completely amazed by it too!  How cool would it be to have a job where you literally start life?  I am envious…  but I do not like college that much!

I know a lot of my family and friends read my blog.  I put the definitions of all the weirdo terms so it can help you understand what I am talking about, plus it helps me keep it in my head.

IVF – In Vitro-fertilization – The eggs are taken out and placed into a dish with the sperm, where they do their own thing.

ICSI – Intra-cytoplasmic sperm injection – the eggs are injected with a sperm.  This is done when there is not enough normal sperm and what we will be doing.

HSG – Hysterosalpingogram – the test where they put dye into you so they can x-ray and look at your reproductive organs.  They are looking for blockages and any other potential problems.

RE – Reproductive Endocrinologist – fertility doctor

The Next Step – War Related Infertility vs. Us

We started a support group on Facebook for families who are going through similar situations.  It is called Families Impacted by War Related Infertility.  We started the page that way we could all share what we know and experience to make it a little easier on others! This page is just for families in this situation, so they can feel safe to share their stories.

Recently, the VA called and wanted to set up a consult to discuss infertility.  We got the call the same day Kevin met with a Congressman, strange.  We have no idea what it is really about.  The law states that the VA does not pay for IVF, so we are not too optimistic with the VA covering it.  It may just be they want to look at his hormone levels. We already know they are very low, not sure how he has functioned this long like this but who knows… We will of course, update people once we know more about the VA’s appointment.

Tomorrow we have a consult with Shady Grove.  They are supposed to be one of the best in the country.   I cannot wait to hear what they have to say.  It feels strange to be excited about having an appointment with an RE doctor.  But, it means we are going somewhere, we have options, we have hope, we have a chance.  That is pretty exciting!  At the same time I am nervous, hormone levels are not where they need to be.  His levels were drastically low the last time we went to the doctor.  The doctor felt that he should have already been feeling bad, but he wasn’t.  Now, several months later, we are facing it or so it seems.  The medicine they give men for hormones kills off sperm.  Typically it will come back after the medicine is stopped, but what if it doesn’t?   Then what? I am terrified that our clock is ticking to have our own children.

I research this topic constantly; it is almost like my second job at this point.  It is so important to me, having a family with Kevin means everything.  I feel like the more educated I am about this process, the higher our chances will be to finding the right path for us.  As a society, we are quiet and secretive about these issues.  I do not have a problem talking about these personal issues to the world; I can be someone else’s voice if they need me to.  These men and women fighting for our country; they should never wonder how they will be able to achieve their dreams of having a family.  We are still being told that since Kevin is retired, IVF treatments will not be covered no matter the reason.  I’ve found opportunities to discuss this issue with others in similar situations; I think together we can get this changed.

I just cannot wait to have answers to all the thousands of questions in my head!  I’m glad that we started this journey before we got married because we will have a solid plan by August when we are ready to start our family.  We are SO ready for this (so are our families!).

If you know anyone in the same or similar situation, please have them like the Facebook page!  Getting the word out will definitely help! It also just helps to have support.  I haven’t started fertility treatments, I haven’t had my heart-broken after treatment, I do not know what it is like yet, nor will I pretend to.  I do know what it is like to sit in a waiting room, feeling like I am literally going to die while waiting for test results, I do know what it is like to be terrified that you will not get our family easily, I do know what it is like to worry and cry over your future family and wonder if it will in fact exist one day.  That is what I know so far in this journey.  One day soon, I will know more and I know the support would help me.  Sometimes, just having someone in the same situation to talk to is all a person needs. I hate for anyone to ever feel alone!  Some people have already mentioned on the support page that they had no idea other people were going through similar things.  It shouldn’t be that way; no one should ever have to feel alone, especially because they are not.  This is a very personal and private issue for many, for me, it is the opportunity to bring people together and support others in similar situations.

With every turbulent storm, comes peace.

With every turbulent storm, comes peace.

He won! Finding strength in unimaginable places

Do you ever just look at a person and wonder, how do they feel?  How does what I just said affect them? How does an event affect them? Is it the same way I feel or am affected? Sometimes I feel so involved in my own emotions, it is almost overwhelming to comprehend what someone else might be feeling.  I often look at my fiancée and I  wonder, how does he feel?  He had a bomb go off right on him… how does that make him feel?  Kevin was blown up.  He was walking and then all of a sudden he wasn’t.  After the IED went off, he looked at himself and saw flesh, blood, and bones sticking out everywhere.  He knew his leg had been blown off.  HOW DOES SOMEONE DEAL WITH THAT?  It baffles me honestly.  How did he decide to keep moving forward after all of this?

After the IED was blown and medic was ready to move him, he was carried by his fellow soldiers to the helicopter to be lifted out.  While in the helicopter they made him keep talking… we know why they wanted him to keep talking and I’m sure he knew why too.  Think about that… laying in a helicopter and having people working on you and making you talk to them so you stay alive.  Can you imagine this?  I can’t.  I can replay what I have seen in movies or on TV.  Those are just actors, they play the part well but they do not know what it is really like.  It makes my mind go crazy thinking that what I’ve seen in movies or the news happened to someone I love. I cannot put myself in his shoes, I cannot understand what it was like for him.   All I know is that somehow he found strength in the deepest and darkest places.

He never quit.  He fought through it all.  He had external fixators putting several pins in one side of his leg and out the other, twice!  It was disgusting looking, but he dealt with it.  Somehow he walked on it.  It was just another bump in the road for him. At one point, his hand was literally sewn on this hip to give it a better blood flow and keep it alive.  Just another bump.  He had around 30 surgeries, and yet again every surgery was just another bump in the road.  He never lost hope, he never gave in;  he knew there was more out there for him and he went for it.

I am so proud of this man.  I’m proud that I get to be his wife. What an honor to spend the rest of your life with someone so loving, inspiring, dedicated, and hard-working.  It bothers me sometimes to think of the things he experienced . We talk about what he says it was like for him and I was there for some of the recovery.  I still don’t know what it was really like though.  All I know is… he won.  He beat the odds and he won.   I am so incredibly proud of him for it!

An x-ray of the external fixator.

An x-ray of the external fixator.

The external fixator... or as we call it - the cage of hell.

The external fixator… or as we call it – the cage of hell.

Cheese arm haha!

Cheese arm haha!

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The beginning of our journey with war related infertility

Kevin & I have made a decision to be open about our struggles.  We believe that only with that openness, can change occur.  Most people know about the injuries that Kevin endured in Afghanistan… an amputated leg below the knee, missing pinky, mangled wrist, and a mangled left leg.  He is lucky to be alive.  Those injuries resulted in 2.5 years of recovery at Walter Reed.  However, there is one injury that has not been talked about much.  This injury could cost us the ability to have a family.  If it wasn’t for advancements in science, that would be definite.  One of his testicles was severally damaged in the blast; it resulted in it having to be removed.  He was on testosterone replacement for years because of it.  Recently, he has undergone tests to find out fertility levels.  The results are not pretty and borderline heartbreaking. Anything under 10 million sperm is considered low.  We are talking about a couple of 100 sperm in our situation.  The reason this happened…war.

The armor that soldiers wear has a protective Kevlar diaper(sounds funny I know, but it works) for protection.  However, the Kevlar diaper does protect them if the blast shoots straight up into their groin.  However in Kevin’s case and how he was striding, as the IED exploded, the blast crept up his leg into enough of an opening to damage groin area.  Had he not been wearing this diaper, the damage would have been even more devastating. The IED’s are set to mangle you; they want you to survive but suffer.  It is sick and it is twisted, but it is the reality.  I am thankful for the thousands of soldiers that show their strength when it was meant to be taken away from them.

Thousands of soldiers have experienced this type of injury, leading to infertility.  Many young military families who were planning to have children are now wondering how their life long dream can come true.  This is not just happening to one or two couples a year, it is several hundred a year, which is adding up to thousands during this war. Some soldiers going to war are only 18 years old, they haven’t even thought of a family yet. The idea of a family is robbed from them before it is even a reality for them.  It is a real problem.  If I knew someone going for deployment now, I would highly recommend freezing some sperm.  The ability to have a family is valued significantly.  When that is taken away from you, it is devastating.  It is worth the precaution in my opinion.

Kevin and I want to start our family soon after getting married.  We’ve already started the process of determining how this is going to be possible for us.  We’ve been told by Walter Reed that we will require IVF in order to conceive a child.  In the middle of April, we have a consultation with Shady Grove Fertility.

The best part… Tricare and the VA Specifically EXCLUDE all fertility treatments.  The cost of the treatments (which runs from $7,000 to $20,000) is completely on the solider and the family. It does not matter to the VA why the infertility is present.  It is simply not covered.  For the soldiers who are only suffering infertility as a result of their war injuries, thousands of dollars will be needed to hopefully make it happen.  To make their dream of having a family a reality will completely depend on their financial situation.  All families should be financially comfortable before having children.  But in this case, being financially ready is not similar to a family who conceives naturally.  It is forking out thousands of dollars before the child is even conceived!   I’ve heard people say… why not adopt?  My response to those people would be, have you considered the cost of adoption?  Also, the want and need to carry your own child can be unbearable.  It does not simply go away.  Plus when so much else has been taken from you, this is just another blow.  Every family deserves to have a family the way they choose.  It saddens and stresses me that Kevin & I will be faced with significant financial obligations in order to have our family.  However, we both agree, it will be worth it.

I will be sharing our story with fertility while we experience it.  We are sharing this to make people aware that this is a real problem.  Our government refuses to recognize it.  Men and woman who fight for us should not face significant financial obligations to have their families, if a war injury caused their infertility. We will be meeting with government officials to get their support with changing the laws that make it this way.  We will be asking for support in the future with issue and we hope you can add your voice!  Our hope is that by sharing such personal stories, we can make a difference for other people facing the same problems.  Our injured soldiers deserve the same opportunity to have the family that they could have had before their injuries.  We know the change will not come soon enough for us; but hopefully, we can help initiate change for others.

baby feet

HFOT – Thankful for amazing people!

Kevin, my fiancée, was injured during his first deployment to Afghanistan.  An IED caused significant damage to his body.  Kevin lost is right leg below the knee, his pinky, and suffered significant damage to his wrist and left leg.  His left leg is covered in skin grafts and shark intergra (that’s right he is part shark now!).  Last year, Kevin had his left ankle fused as a final attempt to save the left leg from amputation.  Kevin, along with the use of an IDEO brace, is able to enjoy life without the significant pain that his ankle as caused him in the past.  Although it still causes problems from time to time, we remain hopeful that the ankle fusion will continue to hold for him!

Kevin retired from military and now lives at home with me.  We live in a home that is not accessible for him.  It is a two level home with a basement.  The bedrooms are upstairs, laundry and storage are in the basement, and the kitchen is on the main floor along with living space.  Our bathroom is not accessible for him at all.  He has to use a portable chair for showering which is really not all that safe day after day.  Living in this home has been emotionally and physically stressful for Kevin.  He always strives to be independent but it is not always possible in our current situation.  He is not able to take a break from the prosthetic at all because the wheelchair cannot fit in our house.  This causes him issues with skin break down on his residual limb.

We recently received some amazing news!!!!!  Homes for Our Troops (www.hfotusa.org) will be building us a home that is completely adapted for Kevin!!Kevin will now have the opportunity to live independently!  We are so excited for such an amazing opportunity.

Homes for Our Troops has treated us like family from the very beginning of this journey.  We are so blessed to have these wonderful people in our lives!  Kevin and I have received so much love and support for this organization.  We are very thankful for this amazing opportunity that they have opened for us!  This opportunity will be a life changer!

We also want to thank everyone who donates, volunteers and shares supportive words with us!  We appreciate it so much and it makes a world of difference! Our new home will be finished in about a year or so!  We are so excited for this new journey!

Along with this post, I attached our video interview with Homes for Our Troops!   I hope you enjoy!